It always seems to happen. We go to Philly, get our report and our new program, come home, work hard, and for the first two months things go really well. Then we have our setback. This time it is Noah's hip. We seemed to be making some progress with it over the first couple of months, but we started noticing some problems a few weeks ago. Now Noah has times every day when he can hardly move it and is in so much pain he is crying (Noah rarely cries because of pain). We have to work really hard to get him to relax so that we can get him comfortable again. It is a completely helpless feeling -- I almost feel angry at having a body that works well. It certainly makes my measly aches and pains seem negligible.
I am emailing our army of folks at Philly to see what we need to do. I'll post some results when I get them.
UPDATE: After three straight nights of Noah being in so much pain that it took us an extra twenty minutes to get him comfortable enough to lay down, he did not show any sign of pain tonight. Of course I concentrated all his program on breathing treatments and his hip protocol. It meant a lot of sitting still today -- which bored Eli terribly, but it seemed to help.
Noah's army is a group of volunteers united in doing a program that will give Noah the best chance he has for reaching his potential. Come by any time for news on his progress and to see pictures of him and his brother.
Prayer Requests
UPDATED 08/20/12
1. Please pray that we can continue to get our new house set up for all of Noah's needs and that we can find all the volunteers we needs to do Noah's program (this is always a big, slow process when we move).
3. Our other big request is for Noah's hip. Noah's out-of-joint left hip is really holding him back. He needs range of motion, and he needs the muscles that are too tight to loosen up and the loose muscles to tighten up and get bigger. Pray for a new type of physical therapy we are started specifically to help the hip.
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